We took Lula to St. Mary's Hospital for Children, which is waaayyy the hell up in Queens, for a consultation for their feeding program. The program is 2 months of intensive feeding therapy 5 days a week from 8am-2pm. It went great and she is now on the waiting list, which is so long she won't even get to the top until the end of the fall.
Her problem isn't really eating per se, it's her digestive system, which processes food very, very slowly. They are hoping that as she gets bigger and stronger she will outgrow the dismotility and low muscle tone and this will allow her to eat more and more by mouth.
She may not even need the program by then but if she does she will have a place there. This is great, except it's so far away we may all have to move to Queens!